tag:blogger.com,1999:blog-3178255977472780580.post7119332209489370735..comments2023-06-21T04:29:48.555-04:00Comments on AnonyMS: Update 2/11Anonymshttp://www.blogger.com/profile/00529465358567812064noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-3178255977472780580.post-29694646331769127592013-03-01T16:08:06.067-05:002013-03-01T16:08:06.067-05:00How are you my friend?
I was thinking; could you n...How are you my friend?<br />I was thinking; could you not try ldn? http://www.ldnscience.org/<br /><br />Or vit D? http://mscure.aussieblogs.com.au/<br /><br />Love<br />KAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-3178255977472780580.post-38654508327647199992013-02-20T17:52:39.013-05:002013-02-20T17:52:39.013-05:00Thinking of you!Thinking of you!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3178255977472780580.post-2170798228785891552013-02-18T08:31:40.744-05:002013-02-18T08:31:40.744-05:00We are at their mercy.
I am still working on gett...We are at their mercy. <br />I am still working on getting it fixed.<br />Take care.Anonymshttps://www.blogger.com/profile/00529465358567812064noreply@blogger.comtag:blogger.com,1999:blog-3178255977472780580.post-21342269324955467962013-02-18T08:30:06.391-05:002013-02-18T08:30:06.391-05:00I am working up the courage to just go in this wee...I am working up the courage to just go in this week and get it done regardless. Has to be done. <br /><br />I have considered using meds to get through it but I don't use them to get through the day as it is.<br />Thanks for writingAnonymshttps://www.blogger.com/profile/00529465358567812064noreply@blogger.comtag:blogger.com,1999:blog-3178255977472780580.post-38525219633087557912013-02-18T08:26:50.282-05:002013-02-18T08:26:50.282-05:00They offered in home IV steroid treatments, but ge...They offered in home IV steroid treatments, but getting the blood work was the only hang up.<br />I was actually excited to hear that was an option since it would be a lot easier.<br />I am working on this needle thing.<br /><br />I have heard of Acthar but not taken it. I will look into it more.<br />Thank you for the links.<br />Anonymshttps://www.blogger.com/profile/00529465358567812064noreply@blogger.comtag:blogger.com,1999:blog-3178255977472780580.post-78912300883028656082013-02-15T18:25:18.524-05:002013-02-15T18:25:18.524-05:00Glad you are getting something hope you're ups...Glad you are getting something hope you're upswing continues, toes were my first improvement being able to separate them and w wiggle them felt good. ..<br />. Small battles but it's what keeps hope going. .<br />Can they give you something to help with the needle issue without it affecting the result of the Bloods, I don't know a seeds sedative or something. ... iv poll for home sounds good of you can get t through one needle. ..<br />P. take care. ..Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3178255977472780580.post-12169318731475741132013-02-12T09:57:54.127-05:002013-02-12T09:57:54.127-05:00I wish I had words of wisdom to help you. I'v...I wish I had words of wisdom to help you. I've been lucky to both live near Hopkins and have a nurse there for a wife. Her contacts were awesome when I was hospitalized for a couple of weeks early on in my MS diagnosis. I was also lucky enough to have a mom with high up contacts in Oncology due to her Cancer research. They were following my treatments through my mom. My diagnosis as I wrote near the time: http://thelifewelllived.blogspot.com/2006_10_01_archive.html<br /><br />The hardest part early in the MS diagnosis cycle is knowing which questions are important. My advice would be to think of what your real questions are. For me, the question wasn't which treatment is safest. The question was and remains which meds are most likely to let me live a life closest to my pre-MS life. My choice was give me 5 good years over 30 crappy ones. So when Copaxone failed, I jumped at the chance to take Tysabri. <br /><br />As for the solumedrol, can they put in a port and give you an IV poll for home? Then you don't have to stay in the ER. My insurance sent a nurse to my house to set me up with instructions for whom to call if any thing went wrong. It is far cheaper for them, and it was far more convenient for me. Then you only have the one needle stick for a few days. <br /><br />Second suggestion, have you or your doctor thought about Acthar? I've never used if for treating a flair, but there are quite a few people who have said it works on http://www.patientslikeme.com/treatments/show/1090-fluoxetine-side-effects-and-efficacy#overview. I am a big fan of this site as gives some effectiveness information from the patients perspective. For what it's worth of the roughly 500 patients who reported taking Acthar, only roughly 10% stopped it because it wasn't working. <br /><br />Good luck, and let me know if there is anything with which I can help.<br /><br />-The Life Well Lived<br />(Geof)Anonymoushttps://www.blogger.com/profile/15388551733433839836noreply@blogger.comtag:blogger.com,1999:blog-3178255977472780580.post-77129007337684781722013-02-11T09:46:08.664-05:002013-02-11T09:46:08.664-05:00They CAN NOT do that!! They can`t cancell your apo...They CAN NOT do that!! They can`t cancell your apointment with the specialist! That is not health care, they are making people more sick!!<br />Of courde you must go to that apointment!<br /><br />I am glad you told your siste more than before!!! I hope you keep doing that. Glad you got your prednison. And don`t hate your self! Specially not for the needle-problem. EVERYONE have something they are scared of. I am scared of people not liking me, I`d swap it with a needle phobia any day. But then again....that is bacause I don`t need needles.....<br /><br />Love you a lot!<br />KAnonymousnoreply@blogger.com